Parry M, Beleno R, Nissim R, Baiden D, Baxter P, Betini R, Bjørnnes AK, Burnside H, Gaetano D, Hemani S, McCarthy J, Nickerson N, Norris C, Nylén-Eriksen M, Owadally T, Pilote L, Warkentin K, Coupal A, Hasan S, Ho M, Kulbak O, Mohammed S, Mullaly L, Theriault J, Wayne N, Wu W, Yeboah EK, O’Hara A, Peter E. (2023). The Mental Health and Well-Being of Unpaid Caregivers: A Cross-Sectional Survey Protocol. BMJ Open, 13, e070374. [PA; contribution: conceptualization, design, drafting and editing manuscript; impact factor = 3.006]. doi:10.1136/bmjopen-2022-070374.
Duggleby, W., O'Rourke, H., Baxter, P., Nekolaichuk, C., Thompson, G., Peacock,S., Ghosh, S., Holroyd-Leduc, J., McAiney, C., Dube, V., Swindle, J., Panucco-Renaud, M. & Sana, S. (2022). Building a New Life: A Qualitative Study of How Family Carers Deal with Significant Changes. BMC Geriatrics, 22:551. https://doi.org/10.1186/s12877-022-03236-8.
Duggleby, W., O'Rourke, H., Swindle, J., Peacock, S., McAiney, C., Baxter, P., Thompson, G., Dubé, V., Nekolaichuk, C., Ghosh, S., Holroyd-Leduc, J. (2020). Study protocol: Pragmatic randomized control trial of My Tools 4 Care- In Care (MT4C-In Care) A web-based tool for family carers of persons with dementia residing in long term care. BMC Geriatrics, 20(1):285. doi: 10.1186/s12877-020-01690-w.
Dev R, Adams AM, Raparelli V, Norris CM, Pilote L, and the GOING-FWD Investigators (including Parry M). (2022). Sex and Gender Determinants of Vascular Disease in the Global Context. Canadian Journal of Cardiology, 38(12), 1799-1811. [MA;study conceptualization, design; impact factor = 4.524, citations = 1]. https://doi.org/10.1016/j.cjca.2022.05.025.
Parry M, Colella T, Pacheco C, Clavel MA, Jaffer S, Mulvagh S, Mullen K, Grewal J, Levinsson A, Price J, Hardy M, Foulds HJA, Gonsalves CA, Norris, C. (2022). Canadian Women’s Heart Health Alliance ATLAS on the Epidemiology, Diagnosis, and Management of CVD in Women, Chapter 6: Sex and Gender-Specific Diagnosis and Treatment. Canadian Journal of Cardiology (CJC) Open, 4, 589-608. [PA; contribution: conceptualization, design, data interpretation, drafting and editing manuscript; impact factor = 4.524, citations = 0]. https://doi.org/10.1016/j.cjco.2022.04.002
Parry, M. (2019). Caregiver burden and cardiovascular disease: Can we afford to keep the health of caregivers in Canada invisible? Invitation to write guest editorial for the Canadian Journal of Cardiology, 35(10), 1267-1269. (Invited Editorial). [PA; contribution: conceptualization, design, data interpretation, drafting and editing manuscript; impact factor = 4.524, citations = 7].
Savundranayagam, M.Y., Basque, S. R., & Johnson, K. (2020). Feasibility of Be EPIC: A dementia-focused person-centered communication intervention for home care workers. Clinical Gerontologist, 43(2): 181-192. DOI: 10.1080/07317115.2019.1694116
Sibalija, J., Savundranayagam, M.Y., Orange, JB., & Kloseck, M. (2020). Social support, social participation, and depression among caregivers and non-caregivers in Canada: A population health perspective. Aging and Mental Health, 24(5), 765-773. https://doi.org/10.1080/13607863.2018.1544223
Savundranayagam, M. Y., Docherty-Skippen, S. M., & Basque, S. (2021). Qualitative insights into the working conditions of personal support workers in long-term care in the context of a person-centered communication training intervention. Research in Gerontological Nursing, 14(5):245-253. Doi:10.3928/19404921-20210708-01
Savundranayagam, M. Y. (2021). Module 6 Chapter 6: Caregiving. This is a knowledge translation product that was developed for CAN-THUMBS UP’s Brain Health Support Program. This is part of the Canadian Consortium on Neurodegeneration in Aging’s new platform: the Canadian Aging and Neurodegeneration Prevention Therapy Study Using Multidimensional Interventions for Brain Support - Unified Platform, or CAN-THUMBS UP.
Kamalraj, P., Savundranayagam, M. Y., Orange, JB, & Kloseck, M. (2021). Communication in home care: Understanding the lived experiences of formal caregivers in communicating with persons living with dementia in their homes. International Journal of Older People Nursing, 00, e12401. https://doi.org/10.1111/opn.12401
Iroanyah, N., Savundranayagam, M.Y., Mundadan,R., & Sivananthan, S., (2021). Equity, diversity, and inclusion in dementia diagnosis: A Canadian perspective (pp. 235-237). World Alzheimer Report 2021, Alzheimer’s Disease International.
Coleman, C.K., Aly, I.M., Dunham, A., Inderhees, K., Richardson, M., Wilson, P., Berkley, B. Savundranayagam, M.Y., Williams, K. (2021). Developing behavioral coding to characterize dementia family caregiver communication behaviors and breakdowns. Western Journal of Nursing Research. https://doi.org/10.1177/01939459211062957
Breen, R., Savundranayagam, M. Y., Orange, JB, & Kothari, A. (2022). Quality home care for persons living with dementia: Personal support workers’ perspectives in Ontario, Canada. Health & Social Care in the Community, 30(5), e2497-e2506. https://doi.org/10.1111/hsc.13692 [45%: IFR: 2.395, 4 citations]
Bender, E., Savundranayagam, M., Murray, L., Orange, J. B. (2022). Supportive strategies for nonverbal communication with persons living with dementia: A scoping review. International Journal of Nursing Studies. 136, 104365 https://doi.org/10.1016/j.ijnurstu.2022.104365
Mundadan, R. G.,Savundranayagam, M. Y., Orange, J. B., Murray, L. L. (2023). Language-based strategies that support person-centered communication in formal home care interactions with persons living with dementia. Journal of Applied Gerontology, 42(4), 639-650. https://doi.org/10.1177/07334648221142852
Parry M, Bjørnnes AK, Burnside H, Hemani S, Nickerson N, Norris C, Peter E, Pilote L, Warkentin K. (2020). Family Carers and COVID-19: A Rapid Integrated Mixed Methods Systematic Review (Published and Unpublished Literature Report). https://drive.google.com/file/d/1ip1MpbDDlFpfO0_enQpF2_Y5t0RXpN0Z/view.
Parry M, Bjørnnes AK, Burnside H, Hemani S, Nickerson N, Norris C, Peter E, Pilote L, Warkentin K. (2020) Family Carers and COVID-19: A Rapid Integrated Mixed Methods Systematic Review (National/Canadian Grey Literature Report). https://drive.google.com/file/d/1OljOVy6Ng15myU3N0pBElnaH-U2n58pQ/view.
An Interactive Map of COVID-19 Resources (November 2020): https://drive.google.com/file/d/1rCgbtlWo_QUc2sYYylH4ASlBuYttkmeF/view
A project summary is found on the Canadian Institutes of Health Research (CIHR), Coronavirus Disease (COVID-19) Website: https://cihr-irsc.gc.ca/e/52072.html
An event summary of CIHR’s COVID-19 and Mental Health Initiative Virtual Learning Series entitled ‘Impacts of COVID-19 on Women’s Mental Health and Substance Use’, including our presentation on ‘The Global Burden of Mental Illness in Family Caregivers during the COVID-19 Pandemic’ (Parry M, Nickerson N, Coupal A) with key recommendations is found on CIHR’s website: https://cihr-irsc.gc.ca/e/documents/cmh-report_vls_es_impact_covid-19_wmh-en.pdf
Be EPIC: Person-Centered Communication with Home Care Clients with Dementia (Funded by Centre for Aging & Brain Health Innovation; Amount - $199,657)
Multigenerational Caregiving at Home for a Relative with Dementia amidst COVID-19: A Qualitative Multiple Case Study of the New Immigrant South Asian Experience
Baxter P, Parry M, Savundranayagam M, Acai A, Bhatti I, Bindra J, Chagani J, Dobbins M, Gaetano D, Gupta J, Hemani S, Hussain M, Innes A, Jack S, Udod S. Collaborators: Mohammed S, Bangladeshi-Canadian Community Services (BCS), Council of Agencies Serving South Asians (CASSA), Ontario Caregiver Organization (OCO), National Initiative for the Care of the Elderly (NICE), Family Councils Ontario (FCO), Alzheimer Society of Toronto, McMaster Institute for Research on Aging (MIRA), South Asian Women’s Centre (SAWC). Canadian Institutes of Health Research Project Grant: Spring 2023. $501,076 . 2023-2026.
The Women’s Cardiovascular Health Hub – A Pan-Canadian Collaborative Network to Improve Women’s Cardiovascular Health
Mullen K, Parry M et al., CIHR National Women’s Health Research Initiative: Pan-Canadian Women’s Health Coalition - Hubs. $840,000. 2023-2027.
Women's Heart Health and Cardiac Rehabilitation: Priority Setting Partnerships with Patients, Caregivers & Clinicians
Colella TJF, Bethell J, Brown R, Cotie L, Foulds H, Harris J, Landry M, Lindsay P, MacKay-Lyons M, Minden K, Mullen KA, Mulvagh S, Oh P, Parry M. CIHR Planning and Dissemination Grant, Spring 2023. $25,000. 2023-2024.
Understanding How to Promote Post-Pandemic Recovery in South Asian Women Caregivers of Older Adults Living in Multigenerational Homes: A Mixed Methods Approach to Identifying Needs and Gaps in Social and Health Services.
Baxter P, Parry M, Savundranayaga M, Innes A, Willetts G. Social Sciences and Humanities Research Council (SSHRC) New Frontiers in Research Fund. $403, 041. 2023-2025.
The Mental Health and Wellbeing of Unpaid Caregivers: An Intersectionality-Informed Mixed Methods Study.
Parry M, Beleno R (Lived Experience Representative), Nissim R, Peter E. Baiden D, Baxter P, Betini R, Bjørnnes AK, Burnside H, Gaetano D (Lived Experience Representative), Hemani S, McCarthy J, Nickerson N (Lived Experience Representative), Norris C, Nylén-Eriksen M, Pilote L, & Warkentin K (Lived Experience Representative). Collaborators and Partners: Brennenstuhl S, Ontario Caregiver Organization, Council for Agencies Serving South Asians (CASSA), Ye Hong Centre for Geriatric Care, Canadian Cancer Society, Mohammed S, Canadian Black Policy Network, Mental Health Commission of Canada, Caregivers Nova Scotia, Wu W. Canadian Institutes of Health Research Project Grant: Fall 2021 and Spring 2022 – Patient Oriented Research Priority Announcement. $100,000. 2022-2023.
2022 – 2023 Waldron, I. (PI), Kapriri, L. (Co-PI), Walker, J., Letts, L., Garcia Diaz, L., Badone, E., Fahnestock, M., Baxter, P., Iroanyah, N. (Co-Is). The experience of Black Canadians living with dementia in the Greater Toronto and Hamilton Area and their care partners in providing care. Labarge Centre for Mobility in Aging Catalyst Grant, $43,500.
2019 - 2023 Duggleby, W., O’Rourke, H. (Co-PIs), Baxter, P. (Ontario Lead), Dube, V., Ghosh, S., Holroyd-Leduc, J., McAiney, C., Nekoliachuk, C., Peacock, S., Thompson, G. (Co-Is). Supporting family caregivers of persons living with dementia: Effectiveness and sustainability of My Tools 4 Care-In-Care. Canadian Public Health Association, Dementia Community Investment Grant, $882,000.
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